When your endo tells you that absolutely none of your symptoms (that you never had before partial or full thyroidectomy), are related to thyroid function, and you are forced to suffer needlessly, all because they don’t want to or can’t, (due to the system being so fucked up), do ANY deep digging, let alone use an ounce of their medically trained brain, to figure out why you always feel like shit.
You then see every other specialist (because the system has our body chopped up into parts so that we go to lots of appointments and get on lots of meds and keep the profit wheel turning) but in the end, if you’re lucky, likely due to the help of fellow thyroid cancer survivors on forums, your unmedically trained brain figures out what’s actually going on in your body and you start to forge a path to healing. that path is often riddled with obstacles because your endo will tell you you don’t know what you’re talking about. you’re connecting the dots in a sensible way they can’t handle it because it threatens their fear of their penis being too small, I mean their ego, and you have to implore them to partner with you in your now FULLY self directed healing.
concurrently you try to find healthy outlets for the rage that has accumulated that does not involve eating or bingeing on the very same purposefully addicting foods that complicate your often invisible condition.
You then see every other specialist (because the system has our body chopped up into parts so that we go to lots of appointments and get on lots of meds and keep the profit wheel turning) but in the end, if you’re lucky, likely due to the help of fellow thyroid cancer survivors on forums, your unmedically trained brain figures out what’s actually going on in your body and you start to forge a path to healing. that path is often riddled with obstacles because your endo will tell you you don’t know what you’re talking about. you’re connecting the dots in a sensible way they can’t handle it because it threatens their fear of their penis being too small, I mean their ego, and you have to implore them to partner with you in your now FULLY self directed healing.
concurrently you try to find healthy outlets for the rage that has accumulated that does not involve eating or bingeing on the very same purposefully addicting foods that complicate your often invisible condition.
Droves of (mostly) women, including myself, have lost years of their life because of Endo gaslighting… how could it be that a major part of our body is removed and the often life robbing symptoms that came about after surgery are unrelated AND None of the two other dozen specialists (from orthos to rheumatologists) and all of the tests and imaging they have ordered reveal any cause of said symptoms?
by joan_of_arc September 19, 2022